Hard. Sad. Relentless. Loving.
If writing about our path with Lewy honestly highlights some of the devastating symptoms I hope it will lead to more awareness of this dementia and others. There are losses of every kind in dementia. It is sad. It is hard. There is no real relief. It is omnipresent for the patient and the caregiver.
It is definitely an area for science to look for breakthroughs. A vast area.
My log of our days is also here to help others in our situation.
It is also very often a kind of “thinking aloud” about what might work or work better.
My caregiving is a without any doubt a work-in-progress. I strive as I struggle; sometimes Burt is my teacher; sometimes not so much.
this is our life 