It’s easier to speak of the “job” we do as caregivers and how hard things are for us.
It’s more of a heartbreak seeing things from the point of view of our beloved.
Dementia is very hard on them. My husband explains that he has a brain disease to people he knows.
Sometimes, he is stoic, philosophically discussing his condition. Other times, he asks, “Why? Who gave me a brain disease?” He worries over what is happening to him. He is engaged with his condition.
I know his challenges are also mine. I have to remind him that I love him and care for him. He feels alone and isolated and dependent upon me. All this has to be too much for him, too.
Not every person with dementia (pwd) is as aware as he tends to be. They all suffer through difficult symptoms.
As a caregiver, knowing how hard Lewy is on him helps keep me more patient.
this is our life 