Inspiration

There is plenty of help along the road as we journey with Burt’s dementia.

Teepa Snow, whom I have dubbed “the dementia whisperer,” offers priceless online advice and interactive sessions for caregivers. YouTube is an outlet for her superb videos.

You can find Careblazers there as well, with Natali Edmonds providing lots of guidance for the journey.

Jason and Leslie are Living with Dementia also on YouTube. Their kindness and youth are striking features of their story. Jason shares the “patient’s” point of view with equanimity and generally cheer.

Weekly “affirmations” land in my email box from Janet Edmunson,
Author of Finding Meaning with Charles: Caregiving with love through a degenerative disease
(www.janetedmunson.com)

My message board group of LBD spouses is invaluable. I talk to a therapist weekly. I rely on groups from the Alzheimer’s Association to help me chart my course. I participate in Zoom meetings with other caregivers.

Oh, and I have learned to accept help when it’s offered and occasionally ask for it when I need it.

If you are traveling this road, you need all the support you can muster.