Resistant

My guy doesn’t make it easy to help him.

Some two years ago, he had trouble swallowing. He was limited in his eating for quite a while, yet he mocked “the chew doctor.”

Instead of working on the issues, he resorted to a diet of lemon meringue tarts. I practically did a dance when he added tuna to the menu.

While he was in rehab last year, he had a speech pathologist who pretty much saved his life. She warned him about malnutrition and got him finishing his meals. Since he came home, he has reverted to not eating anything but the sweets. Almost.

We’ve brought back the speech therapist. She gave him some helpful pointers on how not to choke.

Now, she is principally working on voice. Lewy Body will affect the vocal chords, so soft voice is an issue.

I could allow him to indulge only in Madeleines and peach pie, I guess. I tend to worry about his nutrition and want to see more variety on his plate.

This is where Lewy might just get the better of us. Like everything Lewy, tastebuds can be very unreliable.

A food that he had been enjoying suddenly becomes unpalatable. Like other aspects of the journey, we are on a roller coaster.