I use this bit of insider knowledge as a tagline in my online communications with other caregivers.
Caregiving turns out to be a Zen experience; little by little, we give over our ego to the care.
We have to forgo that inevitable clash of egos in which we as couples engage.
This is a positive by-product of his diagnosis. But lord, I miss being able to just argue with my husband.
The sublimation of the ego is also a necessary part of dealing with your pwd.
That’s what “don’t take it personally” teaches us. Burt can tell me I am the best and the worst practically without taking a breath. I don’t take offense, although I do take it seriously.
Everything he says to me is treated with respect.
My other word of wisdom is that: Without love, this journey would be impossible. But I acknowledge that “Patience and love don’t always naturally go hand in hand.”