There is something both cute and heartbreaking when he says “my big chair” with the possessive enthusiasm of a child. This disease hurts every day in every way.
It’s full of cuts to the heart, like when you find yourself taking pride in his remembering what day it is.
Where is the smart, savvy, resourceful guy you married? A glimmer and a glance, but he needs so much and understands so little. He, too, is lost in all those losses that you see. Reduced.
Take pride in the glimmers. Buck him up as best you can.
A foot massage and rubbing cream on his back is a physical connection he feels and enjoys.
Telling him how much I love and care for him usually works too.
Maybe not today when he’s sure I am not on his side. It’s been a bad, hard day.
Today, I tried to curry favor by reminding him to tell his PT that he had been a champion ping-pong player.
this is our life 