Anxiety is a huge factor in Lewy Body Dementia. I presume that those who were calm and composed prior to dx experience bouts of this distress once they enter Lewy-land.
Burt had more than his share for years before any symptoms. In fact, he was plagued by lifelong panic attacks.
His illness has made the cry “I’m scared” more frequent. Its poignancy is underscored by my other sadnesses and frustrations over his disease.
No, it’s not all about me. The caregiver is not alone in suffering the issues.
Figuring out what “I am scared” actually means is just part of the puzzle. That was never easy.
It took me years to realize that Burt’s fear of receiving a diagnosis when he first presented with what looked like LBD had to do with anxiety.
He was worried that a neurologist would be able to put him in jail. In retrospect, he must have felt he was losing his grip on his mind, and that was why we battled the question of his being “locked up.”
It’s a realization that saddens me.
Wouldn’t it be nice if my observations of his behaviors and motives made it easier to deal? And came to me more quickly?
this is our life 