Let’s get practical about what is involved in care for your p.w.d.
I advocate getting an aide early on when perhaps all your dearest needs is companion care.
This is for you, the spouse or family caregiver. You definitely need the time while s/he is with someone.
The expenses are astronomical. I know not everyone can afford to follow my guidance. I couldn’t afford not to.
My time, aka me-time aka my own sanity-check, was an existential necessity. From day one.
Today, with Burt slipping ever more deeply down a slope of incomprehension [all right, it is I who has trouble understanding], it’s even more existential.
I need time to recharge, to see friends, have lunch, and exercise.
Even with my precious 5 hours a day, I am often frazzled. My short fuse needs the time apart to appreciate the good interactions.
Never mind the messy ones.
this is our life 
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