Heartbreak

Lewy Body Dementia offers just reams of tales of heartbreak. They appear as unexpectedly as if we all didn’t know where our story was heading.

Every decline has been a surprise to me as if there was a plot twist I hadn’t seen coming.

I can’t justify this reaction. I know what this journey of ours is.

Today, I am inconsolably sad. Burt refuses to get up to go out with me. It’s our day together, and he won’t budge.

My pride is making me childish. He just can’t, and I worry that if he won’t today as he did not on Friday, he will no longer be able to walk tomorrow.

Soon, he will be bed bound. I am not ready for that.

He speaks of death and dying. He no longer recognizes my love for him.

I am definitely not ready for that. For none of that.

It’s Lewy, so…maybe things could change again. Or it could be a hangover from his vaccination that will pass. It’s Lewy, so we might be experiencing turbulence and …who knows.