«That’s not a very LBD thing,« my support group leader mentions. It’s not, and I resent that.
There had been «a promise« that I would not be forgotten.
The word was people with Lewy Body Dementia tend to always remember their loved ones. It’s not like Alzheimer’s.
Well, Burt knows I am important in his life.
He just doesn’t recognize that I am in his life; by that I mean he thinks that I am not present. When I say hi it’s me, Tamara he answers where is she bring her to me. He’s always delighted and delightfully eager to see me.
He knows I am important just doesn’t realize I am there by his side.
I know it’s hard to understand, but although I would welcome his recognition, I am more distressed that he feels so abandoned.
Wouldn’t it be nice for him to know I am always with him? That he is not alone!?
It does hurt when his aide says what’s your wife’s name, and he gleefully mispronounces wife#1’s name.
Oh, well. He usually calls out for me. Me, by name.
this is our life 