There is so little that changes by any magnitude.
Burt remains in bed. He wriggles from his side posture to lie on his back. He shifts from the middle to which we’ve struggled to put him until his head leans on the bed rails.
The bed rails were causing a dent on his forehead. We instituted a hat protocol. We added pads over the bed rails. The material from the pads made his skin breakout. We got faux sheepskin to cover the pads.
Pressure sores are a monumental danger at this stage. We are doing our best. Vigilance, cleaning, the application of creams and wound coverings. A turn to his side to take pressure off his butt helps a little.
Communication is prone to being a frustration these days. I pursue some conversation nonetheless. He is saying something, but too often it’s something I cannot comprehend. When there is any thread I can pick up, I try to pursue. In the middle of one of our exchanges, he might turn to the companions in the ceiling to chat.
Music is a sometime thing with us. It may soothe. I let YouTube accompaniments play as long as Burt seems content with the content.
The caring is both easy and hard. It can be physically demanding. Tending to him also can bring me joy. There are moments when just sitting with him is relaxed and relaxing. There are many things to break my heart. It can be emotionally challenging to see him so confused and unmoored.
So little changes in our day-to-day these days.
this is our life 