My mind reverts to the wisdom that warns us who are caregiving that «the cavalry isn’t coming.« It isn’t and we are, surely, on our own.
In fact, if there were a cavalry, we would have to be the one to lead the charge.
We don’t have a cavalry that will save us from the circumstances into which we’ve been thrust.
But I know that there are many helpers on this journey. Lots of support. A plethora of it, in fact.
My network of dependables has recent additions such as the VNS nurses his GP prescribed. It’s very helpful to have their assessment.
A PT from the VNS agency came along for the ride.
The entire crew of VNS help has been calm. They are respectful. They are matter-of-fact and they work without urgency.
The physical therapist gave Burt an excellent work over. I was so happy to see how he exercised Burt’s muscles and eased his joints. Burt was again fast asleep almost as soon as the PT left.
The sleeping is one disturbing new symptom of a continuing decline.
I am fortunate to be able to meet the decline with additional help. Help comes in the form of lots of different services.
My planned 24 hour in home aides come with access to a social worker assigned to us who will make regular check-ins starting with a pre-assignment call and a visit during the first week of the expanded schedule.
We will continue with in home PT/OT from Fox Rehab after VNS finishes their contracted ministrations.
The care coordinator at the home health agency can be a sounding board even before you reach the 24/7 level.
The home health aides are part of your team as well. They watch your loved one and they notice details; they are a part of the cadre of professionals who help me.
I mentioned the at-home dental care that Burt received. That is one decidely helpful service available to the caregiver.
Your neurologist’s office should have social workers to work with the spouse. Perhaps your primary care physician has a social worker on staff as well.
CaringKind and the Alzheimer’s Association, LBDA and LBD Resource Center are supportive agencies offering classes, support groups, and social workers you can talk to.
You have questions; if you’re akin to me, you panic, are uncertain. Build your village. It’s a team, not a cavalry.
It’s people who understand your need for a cavalry. Connect with them; they’re your team.
this is our life 