Routines

It occurs to me that in the five long five short years during which Burt suffered at the hands of Lewy, we lived a lifetime of routines.

We watched Lawrence Welk every week. We had television dates. For a while we went to the park all the time. We had a weekend outing every Saturday and Sunday for a few months before the end.

The physical therapist came and Burt loved his OT. We invited visitors.

While in rehab, he “discovered” the afternoon entertainments. After that, we never missed even if BINGO wasn’t that much fun for him.

I always brought him something from my outings. His first aide noted that to him when I came home. I used to bring treats to the rehab facility too. Not so much lately as the little gifts didn’t register with Burt anymore.

I started playing YouTube music videos over the last months.

He went through several rounds of sleep difficulties. He wasn’t eating. He was eating but it was only cakes and cookies, lemon meringue tarts and Madeleines to be precise.

I think I made an occasion of each phase.

One big event for Burt was a Thanksgiving dinner at LHNH. He praised it for months after. He came with to LHNH Caregiver Appreciation Days a couple of times.

We had a wheelchair escort guy go with us to doctor’s appointments. Walking would be too much for Burt and John was a big help to me and a treat for Burt.