Hesitant

There are many excuses for my reluctance to post about such a personal matter.

It’s Lewy Body Dementia Awareness Month, and that has jogged me towards sharing our experiences.

My husband was terribly confused at first. Those were his symptoms. He didn’t know who I was and would often also try to find me. He denied the disease, and this was hard.

Now that he understands that he has dementia it’s more heartbreaking. This is his journey, and recognizing it is how he copes.

He is still often confused. Lewy Body (which he sweetly calls Benny Blue) is an up and down route. Sufferers and their loved ones call it a roller-coaster.

I have always hated roller-coasters.

There are expert resources, and the LBDA is one. For information, go to https://www.lbda.org/.