Today, I had an intensely isolated time to spend with Burt. It was cold and icy, weather conditions that kept his aide home. They also deterred us from venturing out.
The short trip to the lobby – just to get out – had him grumbling over the cold. Preparations for that trip took so long that it had me regretting the attempt. It was done in the spirit of easing his boredom.
All outings are an effort, and the time it takes to get him ready even just with his pills is astounding. Midway, I am not sure he remembers what he’s meant to be doing.
This is infuriating. It is also sad. He is not being difficult. At least most of the time. He allows himself to be diverted by his own rambling trains of thought. Part of me rejoices that he still has this capacity.
Today, I also realized that I wanted for us to have a community to share his life. He seemed to concur since he was asking if we had anyone who would be visiting us.
We are fortunate in that we often have visitors.
Our friends have not forgotten him. Tonight, he has a little entertainment from a PT session. A call from his cousin to me earlier provided us with lots of conversation and allowed him to use his memory to place that side of the family.
We are fortunate that little things like this can enhance his day.
this is our life 