Rapid

My sense is that Burt started his path in LBD at an advanced stage. From the get-go he went from a period of apathy to being fully confused in what felt like 60 seconds.

Capgras was one major symptom; little people enhabited our home; he needed reassurance that he was home.

Meds helped a lot for about three years after diagnosis. A lot. He chased away his hallucinations; generally recognized me; I didn’t have to walk him through the corridors back to our front door to prove we were at home.

As he’s moved further into Lewy, paranoia and distrust have crept into our relationship. He tells everyone he hates his wife, which leaves me wondering who I am. This is especially true when he thanks me for “being so nice” to him.

As I often say, many of these things confuse me more than they confuse him. That is not to imply that he is not confused.

Right now, I am taking this as a hard hit. My heart doesn’t want to accept the reality of this ugly degenerative disease.

I’m working towards acceptance. Damn!