Everyone’s journey is their own
Your experience with your pwd will likely differ from mine. It’s never the same, yet there are the broad strokes.
Different and the same, there are symptoms that may be familiar or that you and your loved one may never encounter.
The saying among LBD carers is “if you’ve met one person with LBD, you’ve met one person with LBD.” Lewy Body Dementia is not the only dementia for which this is true.
I advise you, if you are starting this journey, or feeling at a loss, don’t anticipate. Staying in the moment will help you. This was a hard lesson for me, as I struggle with the adage to not buy trouble.
This advice does not suggest you proceed in darkness. I studied what I could about Burt’s illness. I allowed others who were caring to guide and support me. In fact, I sought out support groups and professionals to teach me what I needed to ease his path and mine. On occasion, I was able to learn from him as well.
You see, as time passed, I was able to stay mindful and to seize what the moment could instruct.
this is our life 