My role as a caregiver to a person with [Lewy Body] dementia demands I get acquainted with psychosis. A calm and contained demeanor is preferred to one in which I freak out. In a tour of an exhibit in which art and psychiatry crossed paths, it became clear to me that the psychotic makes meContinue reading “Stay calm”
Category Archives: #support
The celebration
In February, on the 25th- yes, I know it’s still 2 months+ away- it will be one year since Burt’s passing. It feels like it’s been so much longer. Not just because he had been going [or gone] for the better part of five years before that. The not-quite a year has moved slowly, draggingContinue reading “The celebration”
Over troubling waters
via Photo Challenge: Bridge My local bridge always smelled of white bread baking when I was growing up and we came over it from Queens. In those days, it was just the 59th Street Bridge, now it’s named in honor of one of the city’s recent mayors, Ed Koch. The bakery on the Queens sideContinue reading “Over troubling waters”
It will be different
Everyone’s journey is their own Your experience with your pwd will likely differ from mine. It’s never the same, yet there are the broad strokes. Different and the same, there are symptoms that may be familiar or that you and your loved one may never encounter. The saying among LBD carers is “if you’ve metContinue reading “It will be different”
Friendship
Inspired by an episode of IMO Burt had been my best friend in so many ways for the 30 years of our marriage before his illness. We shared so much. We went to lunch and we went to the theater. We even worked together. Listen to the IMO episode where Michelle Obama and her bigContinue reading “Friendship”
Supporting
Healing after losing the one you love is not really about moving on. It’s about honoring and it’s about remembering. It’s also about finding joy. A word I am flinging around these days as if it were a flag to the future. It is important. Significantly, it also helps to continue to support others goingContinue reading “Supporting”
