Unsolicited advice. I know! you never want to hear it. If you think about it, you probably don’t want to give it either.
This entire blog is an exercise in giving advice. The advice I give is from my experience during a heart-wrenching journey with Lewy Body. No one asked, but I am here telling.
My motives are pure, I swear, and I sincerely hope that this is helpful.
Burt died last February. I miss him and I am relieved.
His loss was unexpected in the way that anything we know is going to be surprises us. I had many signs in the last several days. We were preparing for hospice.
As time distances me from the trials of daily care, I am left with memories. These are not of those trials so much as of good times with Burt.
As time distances from the day to day of this journey, I become a less reliable source of what to do.
I will offer this advice, always look for the positive in every moment with your loved one.
As time distances you from the difficulties and challenges of your journey together, you will remember the good.
this is our life 