Funny you should ask

There is nothing funny about having dementia or caring for a loved one with dementia. Yet there is nothing more welcome to patient or carer than a hearty laugh. I devise amusing (to me) ways of looking at our plight. I picture Lewy as a roller-coaster (as it is most regularly described) on and offContinue reading “Funny you should ask”

A poem of our time

I say, “Yes. We are together34 years.” I know to you itFeels like we met yesterday. Yesterday. A new experienceFresh. Who are you? WhichWife? Where did we meet? Questions. Wide-eyed likeYou never asked them, or I Never answered. We met.I am impatient, but shouldNot be. It really is the firstTime you’ve asked where When. Who.Continue reading “A poem of our time”

You are invited

This is a Save-the-Date Burt turns 85 this November. He had a downturn. Then, the Lewy roller coaster started back up the hill. Sure, there’s a new baseline that has him looking less like the coherent engaged Burton of 2023, but…. Today, he showed gratitude along with his affection. He’s interested in people and activities.Continue reading “You are invited”

Burt’s on top of it

The “job search” seems to have ended in a mystery job. Mystery to me, at least, but it is vague to Burt as well. He wants me to get him business cards (albeit they’re round, as he describes them). He assigns numbers to his staff, and I am #1 tomorrow, then #2 the next day,Continue reading “Burt’s on top of it”

Going Up

Burt is cognitively more engaged these last couple of weeks. The rescheduled morning meds might be partially responsible. Of course, I am grading on a curve. Burt’s daughter asked me about the multiple wives over the weekend. This reminded me that it appeared that he recognized me more often. There are still occasions when heContinue reading “Going Up”

What does love have to do with it?

I found this poem about love being our salvation (and not) from April. It’s true. Love can’t stop the heartache, but we need it to just “keep on keepin’ on.” Today, Burt had no problem letting me go. He called to check when and where we would meet later. Very agreeable. Last night, my early toContinue reading “What does love have to do with it?”

Cyclin’

Anyone concerned over Burt’s immortal soul should take heart. This morning, he was thanking god. Repeatedly. Mostly for me; I qvell. He was fast asleep before 6 last night and up about 5 this morning. We had an excellent time as he “discovered” we were married. “You’re so nice to me.” He ate well, too.Continue reading “Cyclin’”

The great outdoors

Still a puzzle. All week, he’s talking about loving it outside. It’s a gorgeous, warm, agreeable day, but Burt is not. Agreeable, that is. We’ve discussed his fear that we won’t find our way home both  privately and with his “driver,” the weekend aide. On this occasion, he recognizes that I am with him. SoContinue reading “The great outdoors”

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