It’s a small thing that’s true, but just a few weeks ago, it was an all-consuming (pun intended) huge thing. The food fight at the Beck house has subsided. That my friends is one BIG thing. It’s not just that Burt’s asking for food, but he eats avocado and yogurt. Yogurt! I even gave himContinue reading “One big thing”
Category Archives: Each day, a new day
Weighing the options
Let’s get practical about what is involved in care for your p.w.d. I advocate getting an aide early on when perhaps all your dearest needs is companion care. This is for you, the spouse or family caregiver. You definitely need the time while s/he is with someone. The expenses are astronomical. I know not everyoneContinue reading “Weighing the options”
The fall
I pride myself in pulling no punches when I share our day to day. So, how did I really feel when I got the call from the aide. It’s very scary hearing of a fall. “If it were a broken bone or if it required a trip to the ER,” my mind raced with theContinue reading “The fall”
A peaceful afternoon
Not to worry
It’s natural for caregivers to be vigilant about changes and signs. It’s in the nature of our person with dementia, particularly a partner with Lewy Body, to give us cause for worry. So when we fret, it has to be over reasonable concerns. And in measured tones. My tendency to panic has been noted, evenContinue reading “Not to worry”
Focus on the upside
It may be harder to keep a focus on love and kindness as your pwd’s world unravels. Burt is less of who he was in our every daily interaction. I hear wild stories about his many wives. He tells me of his safe-but-crazy rides in “his car” with a group of friends by way of encouragingContinue reading “Focus on the upside”
Chug chug
The Lewy roller-coaster has taken a small uphill turn. Burt’s no more cogent than he was at the slip down the slope. The change is more to do with his engagement with others. He’s happy to greet those he passes and more interested in being around others. We’re still surrounded by extra wives (now again,Continue reading “Chug chug”
A bad boy
Perhaps my tolerance for Burt’s more difficult side stems from my affection for the bad boy. Some of his outbursts are angry and defensive, but others have a touch of the mischievous. My boy has a wild streak. Still.
And that
Argumentative
Early on, I lamented not being able to argue with my husband. Now, when I scream at him out of exasperation from another room, he thinks there are two crazy women in his life. That’s not fair to him and must be a tad terrifying. His demonstrations of anger seem to be a way ofContinue reading “Argumentative”
this is our life 