Category Archives: Lewy Body

Reluctantly, I am documenting a part of our life I never anticipated. It’s an easy bet that anyone thrown into a caregiving role didn’t expect life to turn out as it has. It’s also true that for many of us, the caregiving has brought us strength we never expected.

Everyone seems to have settled on calling this a journey. I get it. Life is a trip we take. It’s a journey we have undertaken and a course that we are set upon to follow. Whither it takes us, we go. Like many others amongst us, our journey took us to unexpected places. Several yearsContinue reading “Where we are”

There are many excuses for my reluctance to post about such a personal matter. It’s Lewy Body Dementia Awareness Month, and that has jogged me towards sharing our experiences. My husband was terribly confused at first. Those were his symptoms. He didn’t know who I was and would often also try to find me. HeContinue reading “Hesitant”

It’s been an unexpected journey in every way. Along the way, I have met women and men who care for their partners with dementia. Some of these caregivers are providing comfort and support to former spouses or even ex-boyfriends. This speaks to the connection they have with their exes. It also speaks of the deepContinue reading “Along the way”