Mourning

I will mourn you when

You’re gone, and those

Rites of your passing

Allow my grief out from

The volcano the furnace

The seismic pressure

I am holding together

While you live each day

As less of who you are

Diminished, diminishing

Lost but still here, still

Mine, not fully mine, and

Not always lost. Still

Funny, silly, bitter, and

Yes, still sweet. My love

No longer the helpmate,

The lover, the champion

Of our lives. Still lost. I

Will mourn you now and

Then. I will mourn. Now

The concept, Ambiguous Loss, is sound and disturbing. It is not the loss that is ambiguous; that is real but there is ambiguity. That lies in the fact that you are grieving someone who has not passed. Lucky you, now you can mix guilt in with the grief.

Burt was alive when I wrote this poem of anticipatory grief. I anticipated my grief, another accurate and disturbing concept, knowing I would mourn him when he died. I do. But I also mourned all the other losses we had as he declined. They call it Anticipatory Grief, which again is not completely accurate. You are grieving in advance of the full-on loss; but that grief, while you’re beloved is alive and has dementia, that grief is in real time.

Burt was still my love as he went into the decline of dementia. He was not the man he had been. He never would be again except in grief. And in memory.

These are two [of many] songs of grief. The In March poem is a companion to Mourning, as you can see in its echo.

Grieving

There are so many words but
I have only used loss; I’ve only
Said “I’m mourning” or “I mourn”
I have said “I miss you” and I’ve
Mentioned that as I missed you,
You were also missing. I knew
You were lost and losing little
Bits of yourself over time which
I noticed you had lost. A whole
Concept, a man-made construct
Time was lost to you. This not
Being able to tell time caused
A consternation. You did ask
After the time a lot. “What time
Is it?” A question that came at
Minutes apart. You wanted to
Know, to understand but you no
Longer had the sense of it. Time
Was already really irrelevant and
Lost. I knew I was grieving you
[There I have said it.] I still had
Little bits of you but I mourned,
Bereft of the partner who would
Know how to fix it. Whatever it
Might be. The companion who
Did things, set the clocks back
Or forward, the lover who would
Recognize my feelings, the friend
Who would console when I was
Sad. I grieved alone. Sad alone. I rejoiced alone. You were here and we did laugh and chat together. Your chitchat could be so very Endearing. Now you are truly lost
To me but not lost in confusion   Lost. Gone. I can begin mourning
Properly, my grief made real by
Your timely departure. You were
Able to pick your moment, time
Your passing perfectly. I have a
New concept of time now too, a
Time when a vibrant loving man
Left me with memories, a time
When that man, my man began
His long fail into confusion, and
That time when I journeyed with
Him in sickness ’til death did us
Part and I was left bereft but with
Memories of his strength, of him.
Memories of his generosity and
His love and his care. I grieve his
Loss. I mourn your passing but
I rejoice in all our time together.
It was our time. We used it well.
Bereavement, grief, has its time
Now. Memories of all our time
Fill my time now as I grieve you
And miss us. As I mourn our time

In March, after you’re gone

I mourn you now as the
Rites of your passing let
Me, permit me to mourn
You, completely, a little
At a time. Mourning, it’s
A process, I say, a little at
A time but in all this time
I have mourned you, not
Completely but a little at
A time as I lost you, not
Completely, but a little at
A time. All this time when
You were still here yet not
Completely you, I mourned
You, losing you as I did, a
Little at a time. I mourned
Through laughter and tears
That never completely fall
As you slipped away, lost
To me, lost to yourself, you
Are gone now, passed from
This realm, no longer lost,
As you were when first I
Mourned you, yet lost to
Me. I will mourn you. Now

Theater, or

Whatever favored activity

I will make the case for theater as a healing art for those of us grieving a loss as well as it may be for a nation in crisis.

Theater does not stand alone in its healing powers. Dance, you bopping to a tune while mopping the floors, or the variety you can catch on the stage or screen, is a great heal, too.

When Burt was around, I used a PBS retrospective of Swan Lake as entertainment for us. Music, ah music, it is nearly legendary as a healer.

When you’re caregiving, there is no time to head off to see a play. I get that. My theater going when Burt was alive was watching clips on our TV with him, and lots of Bluey.*


*incidentally a favorite of mine.


After he passed, I re-started my [our, truth be told] old hobby of going to stage shows. I spent a week at a dance festival and have seen several shows. I reviewed these in the past, and am doing so now.

You, of course, may have other interests. I suggest you take them up again. Long walks in which I rediscover places where we had been add layers of experience to the memories from the before.

I take photos and often comment when I share them on my blogs. I wrote blogs while Burt was alive, too, so there is a continuity for me. That’s good, I think.

Grieving doesn’t ask to be healed. It is a remembering. I have many great rememberings of my life with Burt.

Loss is an odd experience and I try to share my mourning with friends. It keeps it present for me; it keeps Burt present for me.

That’s good I think.

Like we used to do

It’s not a flippant thought, really; I do find Burt coming with me, tagging along as I wander the city.

Some places bring me memories of us. Some are new to me and I feel like we are exploring. Like we used to do.

The Dance Parade was first organized in 2007 in protest of a Prohibition-era city Cabaret Law

It’s pleasing to imagine, for instance, that I am introducing Burt to the dance parade on lower 6th Avenue. Neither of us had seen this before.

And then to see how a familiar area of NYC has changed from what Burt and I would recognize.

Grieving the loss

Caregiving is the hardest job I ever had. Or, it was until Burt died and I suddenly had a much harder job.

This, like my caring for him, is truly a labor of love.

The work of missing Burt involves the pleasure of remembering him. It’s a consolation prize but not really a prize since it recognizes his absence.

This work of recall hurts and heals; Burt is no longer present, and I miss him. I am witnessing that loss every day.

Remembering Burt helps bring him back in a way. Honoring his memory brings a smile to my heart.

Hats!

My friend ACJ said you got Burt a lot of hats. Well, his grandpa was a haberdasher. The other was a mason, but I never bought him a brick.

Burt, it turns out, got me a lot of hats, too. From the selection as I rummaged this morning, I chose the peaky cap he’d gotten me in the rain.

There were many others. The blue beret and the grey clochey one seemed less suited to today’s possible showers vibe.

Thanks to the children’s book, Hats for Sale, I always smile over the hat-thing. Burt used to borrow my hats which also made me smile.

Found treasures

If you’ve been following along, you might recall that taking Burt to a park was my favorite project.

Burt had always been- not in the flannel shirt/camping way but in the New York City style- an outdoors guy. He loved to walk. He and I loved sitting watching the river traffic pass.

We had been doing this for years. As his mobility suffered, getting outside was a greater challenge for me. Our weekend aide, L came on board last May to help with that. We called him Burt’s driver. Usually, Burt would walk part of the way, up the big ramp out the back and from there get driven.

We went out every Saturday and Sunday and then we went out to Sedutto’s for ice cream on the way home; a couple of times, we had ice cream in a park.

I think the fun we had improved our quality of life immensely.

So many reminders

Thank you, Burton

Missing Burt has been a natural if sad pastime; these last couple of months, the memory of him has accompanied me as I once again roam our town.

I tread the paths we walked over the years. Yesterday, I felt like he was definitely with me in familiar and some new places.

Yesterday, memory took me all over town.

I went to the SSA office to take care of some widow business. I walked to 48th from the M31 stop at 57th and 8th Ave. Then down Broadway to an appointment at 25th and 1st.

I got so many reminders of places we had been to on that leg of my day. There were some changes to the scenery but we muddled through.

Carlo’s claim a long residency here on Broadway, but we’re pretty sure they’re newcomers

Finished with my dentist, [and no, Burt had not been there before], I proceeded to figure out a path to the Soho Playhouse. The village had been a teenage hang of mine, but then, oh Burt and I ate here, and we went to The Minetta Theater, and… my oh my.

I acknowledge I needed more help than my phone’s navigation system to find my way. I asked and strangers were kind.

Memories did not end when To Free a Mockingbird was over and I spilled off the M55 at 44th to walk along 6th Avenue to 57th. I passed the spot by the NY Mets TV station where we used to sit in the grand Rockefeller Center acreage. Radio City Music Hall was kind of a hang for us, too.

As I walked by jewelry row, I turned my finger to admire the engagement ring we had picked out together at this store.

Then there were the Hilton and the Warwick where we ate and regrouped on our way to a show or some outing. And of course that corner of 6th where we so often boarded the M31 to get home.

A long day away from our home, but filled with thoughts of where we had been. Together.

Once upon a time

Recollecting Burt’s time in the rehab center today gave me a little relief although the memory was hard. The fact that I could affirm that I stood for him when he needed my protection felt good.

The nursing home-rehab was not a good place. I would not have placed Burt there over the long haul. I did choose to keep him in the facility longer than Medicare allowed because he needed the PT. I knew I could be his advocate while he was there. I had to be.

Advocacy was a necessity. I was insistent that the doctors here not change his meds; they did at first and I argued against this. It took a little doing but that was my brief, to advocate for him. I had to push to make sure Burt got the physical therapy he needed.

It was sad to see how many of the residents of this place had noone to speak for them. Most had no visitors in all the time Burt was there. I visited every day and usually spent 7 to 9 hours with him. I brought him treats and at times some for his roommates.

There were four men in Burt’s room. We wound up there after three moves. First, we were in a quarantine because Burt had had Covid in hospital.

The move to another floor put Burt in a room with just one roommate. I had some critique  for the CNAs and my [honestly] gentle rebukes got us a transfer to a floor where the patients were screaming. It felt and looked like a psycho ward.

This time I did not protest to the charge nurse but went to the patient ombudsmen. It felt like that would be more effective. It was.

We moved to what was our last room at this facility. Most patients were residents but there were some transients, like Burt, on this floor.

We settled in and I made nice to the workers at the nursing station; I  ordered pizza for the staff. I invited the charge nurse to lunch.

My bribes weren’t much help in getting Burt the attention he needed or deserved. I hired aides to come help out since it was clear the staff was stretched thin.

When the time came to bring Burt home, I had misgivings. I worried that I couldn’t provide proper care. Burt was able to walk with a walker. He was partially incontinent. He needed continuing PT. We took on extra help to help with his return. I continued in my role as his advocate and protector.

We spent the next two years enjoying as good a life as we possibly could. That’s all anyone can do, the best you can.

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