#about-our-journey – Page 2

Burt and I

Mourning and loss isn’t an illness. We don’t want to recover from it. We don’t expect to recover. We do, of course, hope to get past the initial shock and sadness. But the loss, that’s now and forever. The loss is permanent. Burt’s not coming back. I mourn that loss. It saddens me to have toContinue reading “Burt and I”

From some writing session prompts

Resilient: hey, tough guy Burt in dementia was clearly and increasingly vulnerable. His losses were evident, yet, through it all, he maintained a resilience that served him well. I thought I was steering the ship but my captain somehow kept his hand on the rudder. We bobbed through troubled waters with Burt somehow maintaining anContinue reading “From some writing session prompts”

The journey

You and your spouse are on this journey together, and apart. You stand by his side, but his path is not the same as yours. Lewy Body Dementia is a disease built for two, as I had often observed over the years. When your spouse is stricken, you and s/he are both in it forContinue reading “The journey”

The Burt Blog

When I started this blog, I was “working” other sites, sharing my thoughts on a variety of topics. I was reluctant to breach our privacy in such a blatantly public way. Burt would be more exposed than I and I had some concern for his dignity. My decision was cemented by two facts. Lewy BodyContinue reading “The Burt Blog”