There is nothing funny about having dementia or caring for a loved one with dementia. Yet there is nothing more welcome to patient or carer than a hearty laugh. I devise amusing (to me) ways of looking at our plight. I picture Lewy as a roller-coaster (as it is most regularly described) on and offContinue reading “Funny you should ask”
Tag Archives: #day-in-the-life
Burt’s on top of it
The “job search” seems to have ended in a mystery job. Mystery to me, at least, but it is vague to Burt as well. He wants me to get him business cards (albeit they’re round, as he describes them). He assigns numbers to his staff, and I am #1 tomorrow, then #2 the next day,Continue reading “Burt’s on top of it”
Drama
Who needs the theater when Burt is so dramatic.* His declaration that we’ll all be dead if we go this way or that might (or not) be out of a sincere fear. It is, however, always on cue. Going out is still fraught with lord knows what, but he doesn’t fail at making it anContinue reading “Drama”
What does love have to do with it?
I found this poem about love being our salvation (and not) from April. It’s true. Love can’t stop the heartache, but we need it to just “keep on keepin’ on.” Today, Burt had no problem letting me go. He called to check when and where we would meet later. Very agreeable. Last night, my early toContinue reading “What does love have to do with it?”
Our outing collage
The great outdoors
Still a puzzle. All week, he’s talking about loving it outside. It’s a gorgeous, warm, agreeable day, but Burt is not. Agreeable, that is. We’ve discussed his fear that we won’t find our way home both privately and with his “driver,” the weekend aide. On this occasion, he recognizes that I am with him. SoContinue reading “The great outdoors”
My poet
This is what I needed to move from the darkness I have been feeling. [To wit, a poem called Seeking Joy, which hardly hit its mark.] It was a contribution by my love, my p.w.d. Burt said something that was very uncharacteristic. He told me, “You’re talking to a poet.” I said, “You are theContinue reading “My poet”
Love
Ours is a love story, so we have ourForever after, although sometimes,It resides with sorrow, not always aHappily, like in the fairy tales whereAll’s well because it ends well. Aren’t All endings sad? Our forever love isIn this moment. Ours is a love story.
So very, very slow
Every move, every change of venue, let’s say from the bedroom to the big brown chair, is a project. Burt notices my lack of patience for these life-altering transitions. “You’re not being nice,” he might say or more cuttingly “boy everybody here is so rotten.” Developing a “wait and let it develop” attitude might beContinue reading “So very, very slow”
Not to worry
It’s natural for caregivers to be vigilant about changes and signs. It’s in the nature of our person with dementia, particularly a partner with Lewy Body, to give us cause for worry. So when we fret, it has to be over reasonable concerns. And in measured tones. My tendency to panic has been noted, evenContinue reading “Not to worry”
this is our life 