#moods – this is our life

This guy

What can I say?

Burt had a miserable day with his aide, I should say substitute aide yesterday. He was agitated. He was nasty. He threatened the police. The trigger is hard to pinpoint. Substitute might be a part of it. She told him no. He doesn’t like no. Our regular carer texted the night before and said sheContinue reading “What can I say?”

More of Less

There is something both cute and heartbreaking when he says “my big chair” with the possessive enthusiasm of a child. This disease hurts every day in every way. It’s full of cuts to the heart, like when you find yourself taking pride in his remembering what day it is. Where is the smart, savvy, resourcefulContinue reading “More of Less”

Ego

I use this bit of insider knowledge as a tagline in my online communications with other caregivers. Caregiving turns out to be a Zen experience; little by little, we give over our ego to the care. We have to forgo that inevitable clash of egos in which we as couples engage. This is a positiveContinue reading “Ego”

Up up down up

Burt had two days of the grumps following our outing to the Thanksgiving Dinner and Dance. I realized this was a smaller version of the reaction I had read about, the slide that follows a big event. It was mild if unpleasant. On Wednesday, he told me what he liked about his aide was thatContinue reading “Up up down up”