In a rambling dinner conversation, Burt’s favorite aide [and mine] and I inevitably spoke of him. His idiosyncracies over the rules of laundry and eager attendance to the mailbox were still part of daily living when she began. Only toward the end, in the last few months, did Burt think I was just never here. MyContinue reading “It went so fast”
Tag Archives: #progression
He doesn’t call
Burt always called me during my respite hours. At one time, while he still could, he’d place the calls himself, relying on the numbers from the phone book I had made him. Then he started getting his aide to place the call or to text me to call him. It was intrusive. I picked upContinue reading “He doesn’t call”
Grateful
It’s easy to find little annoyances that “ruin” our day but honestly it’s just as easy to find gratitude. I am heading to meet some fellow caregivers at a party. Alzheimer’s Association 6th Annual Caregiver Appreciation Event will be our first in person meet-up. Those of us who’ve been answering writer prompts will also shareContinue reading “Grateful”
A deep dive
In the abstract, I am fascinated by the mechanisms of Burt’s disease. In reality, the manifestations of Lewy Body are overwhelmingly sad. Trying to deduce patterns is part of my close study into all things Burt. I want to see what prompts his irrational conclusions and how his fantasies develop. There probably is no pattern,Continue reading “A deep dive”
Compassion
Robbed of everything meaningful, the pwd in your life progressively declines a little further. Disease progression is relentless. Burt is a poor patient. He resists being prodded, guided, and helped. It makes those doing what’s best for him and doing their best feel like giving up. At best, it’s exasperating. In these instances, remembering whoContinue reading “Compassion”
this is our life 