Burt was extraordinary. He and I had lived a happy, carefree, and modest life. We had no ambition to stir us towards greatness. He had daydreams of coaching a hapless team with me in the dug- out by his side. Sometimes. Not an ambition. We were impressed by talent and in Burt’s case that meantContinue reading “Burt deserved the extraordinary [redux]”
Category Archives: #caregiving
Cost of Care
Axios reports, as anyone caring for a person needing care knows, that home health care services are rising. As someone who paid for home health aides for Burt for the better part of his five year affliction, I can attest how very expensive this already was. If only… if only we had gotten long-term careContinue reading “Cost of Care”
A sea change
Burt’s roller coaster has just been on one dip after another. His being bedbound poses a serious risk. Today we are expecting a visit from a nurse from VNS to assess the damage. We are treating two sores and the beginning of one on his butt cheek. Perhaps the nurse will have some added wisdom.Continue reading “A sea change”
this is our life 