Changes

Burt seems less restless, even calm, despite the endless chatter. He’ll say he’s scared, but it isn’t urgent. In other words, the prediction that this declining state would be “easier” has come to fruition. His aides can give him water or juice. He’s amenable to eating if they feed him. Burt now entertains himself inContinue reading “Changes”

It’s a chore. It’s a delight.

The sound of the glug glug as the bottle empties makes me smile. Feeding Burt is a task. My wait time patience between spoonfuls is limited. I have to resort to a slow, silent count and to posture breaks. Feeding Burt is also the one remaining intimacy we share. That and giving him to drinkContinue reading “It’s a chore. It’s a delight.”

Caring. Day in/day out.

My role as caregiver is certainly not an easy job. I am not saying this out of self-congratulations or pity. I try not to allow it to limit or overwhelm me. In order to, you know, keep on keeping on, I have to stay strong and centered. Burt has often told me not to getContinue reading “Caring. Day in/day out.”

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