day-to-day – this is our life

What’s next?

The tears of a widow are different from the tears of the caregiving spouse. There is more silence in which to grieve when the beloved has died. The losses are more finite, more final. The losses while our loved one is still alive but slipping away little by little are just the beginning. I supposeContinue reading “What’s next?”

It will be different

Everyone’s journey is their own Your experience with your pwd will likely differ from mine. It’s never the same, yet there are the broad strokes. Different and the same, there are symptoms that may be familiar or that you and your loved one may never encounter. The saying among LBD carers is “if you’ve metContinue reading “It will be different”

From some writing session prompts

Resilient: hey, tough guy Burt in dementia was clearly and increasingly vulnerable. His losses were evident, yet, through it all, he maintained a resilience that served him well. I thought I was steering the ship but my captain somehow kept his hand on the rudder. We bobbed through troubled waters with Burt somehow maintaining anContinue reading “From some writing session prompts”

Flirty

Burt was not an extravagantly flamboyant flirt. He did it on the qt so he could keep plausible deniability. He wasn’t ashamed of his actions but he liked his flirtations under the radar. He always flirted, in a quiet what do you think way. Years ago, in what I’ve been calling the before, Burt toldContinue reading “Flirty”

The sun will

The last five years have been harder on me than I felt as they rolled along. Caregiving is an encompassing experience. It holds your focus; your loved one keeps you focused on doing for…. Burt was the center for my worry and care. I was a model for selfcare, I say with no boast orContinue reading “The sun will”

Day to day

There is so little that changes by any magnitude. Burt remains in bed. He wriggles from his side posture to lie on his back. He shifts from the middle to which we’ve struggled to put him until his head leans on the bed rails. The bed rails were causing a dent on his forehead. WeContinue reading “Day to day”