Burt had a sudden downturn starting in October. Although I have documented Burt’s decline, I am still unsure of the actual events. His decline has been incremental and gradual. It has also come on suddenly, precipitously and unexpectedly. In October, things like confusion and hallucinations seemed more noticeable. Soon thereafter, one of his aides andContinue reading “A timeline”
Category Archives: #dementia
Xtra xtra read all about it
Today, after resisting when our weekend guy put him in a sitting position, Burt settled into it. He relaxed and held himself up. This was unusual for him as he generally sinks back. Not unexpectedly, he started talking. His narrative ran into unfamiliar territory as he started discussing getting up. We perked up. His aideContinue reading “Xtra xtra read all about it”
Confusio n
Let’s look at what being confused is really like. I think we often feel that it’s a pleasant state or, if not quite pleasant, a not-unpleasant one. You look around, and things don’t make sense, but you know, who cares: It’s all good. In this assessment, confusion is confused with the “no worties” state ofContinue reading “Confusio n”
It’s never too late
The jingle about Jello Instant Pudding® is running through my head right now, but honestly this is a serious post about a serious question. The other night, Burt, in the midst of his confusion, was lamenting how “sick” he feels. My response was to tell him that whatever was bothering him, hurting him and upsettingContinue reading “It’s never too late”
Rapid
My sense is that Burt started his path in LBD at an advanced stage. From the get-go he went from a period of apathy to being fully confused in what felt like 60 seconds. Capgras was one major symptom; little people enhabited our home; he needed reassurance that he was home. Meds helped a lotContinue reading “Rapid”
Sweet
In some ways, he’s more my child than my husband. He seems to acknowledge this on some level when he refers to me as his mother; of course, when he does, it’s part of his confusions, delusions, and hallucinations. When I came back from an unusually late outing in which I enjoyed the hospitality ofContinue reading “Sweet”
Awareness
In trying to keep a positive attitude over our situation, I also try to find humor when I can. This doesn’t mean that dementia is not a dreadful disease. As it is Lewy Body Awareness Month, we need to stay aware of just how devastating LBD is. All dementias occur as some necessary protein inContinue reading “Awareness”
On Repeat
This is our life is getting to be a bit repetitious. We manufacture our own excitement when dealing with Lewy but there’s all that shucking and diving, ducking and jiving. And lots of calls to say again. On Saturday I ignored Burt who did not settle down again last night and listened to 2 ConanContinue reading “On Repeat”
This guy
Lewy lou-ie
I can do nothing to make Burt know who I am. I feel like I should be able to force the issue somehow. It is heedless and needless to allow his who-are-you’s to distress me. It’s the disease. Our weekly outings are very exhausting. In the evening, when we get home, he has to askContinue reading “Lewy lou-ie”
