My friend J came to join me at a theater performance wearing a Falcons varsity jacket. Why is that significant? Unbeknownst to her, Burt and his highschool pals called themselves the Falcons. And, yes, they had varsity jackets. It’s possible that this one, found at a bin in a second hand store, could have belongedContinue reading “The Falcons”
Category Archives: Friends
So, what now?
I am aimless the day after Burt has left his body and his body has been taken away by the men from the mortuary. I visit the funeral home to fill out paperwork that will carry him away. Even further. Or carry his body away. I turn spiritual of a sudden. I know his soul,Continue reading “So, what now?”
The practice of care
Best practices include the care of our darlings but as caregivers we need to look out for ourselves. Care for the caregiver includes respite, a topic dear to me and upon which I have expostulated at length. Self-care can and should be done in the company of others. Spend time with friends. I have lunchContinue reading “The practice of care”
Collateral damage
Burt is in the line of fire as Lewy takes more and more of his self. I feel for his losses as I do for my own. He spoke of himself in the third person today. “Does Burt know?,” he asked. I don’t understand so much of what he utters these days, but I heardContinue reading “Collateral damage”
A Welcome Visitor
Burt really perked up during a visit this week. Our guest was someone we’ve known for many years; Burt didn’t remember him but he was a happier guy than he’d been in awhile. He even made an effort to get out of bed to go to his recliner. He told jokes. Visits break up theContinue reading “A Welcome Visitor”
A good week. I’m still stressed. But it was good.
Here I am. I am affirming my positives despite the stress of last week. Let me count the ways: [I had a little extra stress from the unexpectedly threatening phone call that I got on Friday. You know that feeling when you shake everything off and then have a nightmare.] Today, the hospital bed arrivedContinue reading “A good week. I’m still stressed. But it was good.”
Too much
A side effect of Burt’s diagnosis has been my tendency to grossly overshare. How are you is a simple question but my answer is overloaded. Too often full of the kind of detail we bill as TMI. No simple answer. I try to keep it light or funny but I definitely talk too much. IContinue reading “Too much”
Party king
A birthday surprise
“I am never going here with you again,” Burt whispers. Maybe he even said “anywhere with you,” but you get the gist. It was a wonderful party. Our friends brought him thoughtful gifts. At my suggestion, we sang him the birthday song. (Do we still owe someone royalties on that?) The first arrivals talked amongContinue reading “A birthday surprise”
this is our life 