My love thinks he met yet one more new wife. Today, this gave him qualms. Briefly. Can I have more than one wife at a time? I said you’re the exception to the rule. It’s ok for you. He is very happy with this one. She’s mostly nice to him; an exception to that wasContinue reading “News? Not much”
Category Archives: Grateful
The things we still share
Much is lost as LBD progresses. That doesn’t mean we’ve lost everything to this disease. We still exchange affection in words and deeds. We kiss. We hold hands. We express how very very much we love each other. Often. He still says thank you when he wants to show appreciation. More importantly, Burt still knowsContinue reading “The things we still share”
That village
It takes a village. Hillary Clinton on bringing up children but applies as well to how society runs Good neighbors. They have provided continuing support for me. My personal cavalry when, one day, Burt was so agitated about going out to the street that he rammed his walker against a wall. Down he went. AContinue reading “That village”
Help is on the way
As a caregiver, it’s easy (and way too common) to feel alone on the journey. In many ways, we are. The idea that no one is coming to our rescue when we are in the throes of a Lewy episode; the feeling that the worst moments are the ones only we can handle is provocative.Continue reading “Help is on the way”
Superstitious
I am not a believer. I am an atheist. Without a religious allegiance or a belief in a god or an afterlife, you would think I would be free from all other superstitions. In fact, I inherited much of my magical thinking from my mother. She, too, disdained religion, but lord she had a worldContinue reading “Superstitious”
Workshop thoughts
He’s looking good. The invisible burden. He’s doing well, they’ll say. No response to that makes it any easier. Yes, it’s a progressive illness, and we’re doing what we can. He has good days. I’m glad you got him on a better day. Your visit certainly perked him up. In truth, I have rarely hadContinue reading “Workshop thoughts”
Taking it to the streets
We are still scheduled to walk virtually with CaringKind on Oct 19th in CentralPark. You may throw some support to Team Burt here at the link for a fundraising page for sponsorship of our passive walking: https://give.caringkindnyc.org/fundraiser/5610000 Promoting or joining othet walks: The Alzheimer’s Association has walks all across the country. Their Manhattan walk isContinue reading “Taking it to the streets”
Proper (med) regimen
We have Emily Dickenson to thank for the wonderful image that gives hope all this lightness. We can always use some feathers whether we are caregiving or not. It was definitely a better choice when I returned Burt to his morning meds first thing. He has, in consequence, returned to some measure of sharpness. TheContinue reading “Proper (med) regimen”
Our outing collage
One big thing
It’s a small thing that’s true, but just a few weeks ago, it was an all-consuming (pun intended) huge thing. The food fight at the Beck house has subsided. That my friends is one BIG thing. It’s not just that Burt’s asking for food, but he eats avocado and yogurt. Yogurt! I even gave himContinue reading “One big thing”
this is our life 