It’s hard to explain. It makes little sense even to me. But… There is something about the challenging symptoms and behaviors that, as they pile on, invite a more vigorous response. He has wilder delusions, more vivid hallucinations, less coherent responses, and my capacity to deal is supercharged. Yes. I have bags under my eyesContinue reading “Harder=Easier”
Category Archives: Symptoms & signs
Smooth fella
Burt falls in love easily. Thanks to Capgras Syndrome, I am one of dozens of Tamaras in his life. A new me surfaces on many a morning. There is no convincing him I am the “real” the “original” the “favorite” wife. This is especially so after lover boy introduces himself as single or single-and-hates-his-wife. IContinue reading “Smooth fella”
Psychosis
Cognitive function, executive function, bradyfrenia, autonomic system, bradykinesia. There are so many impairments as Lewy bodies take over, and our loved one declines. Psychoses. There’s a scary word. And those are the hardest aspects of LBD to manage. I watch out for falls. Hold onto him for dear life sometimes to maneuver him onto aContinue reading “Psychosis”
Stay calm
My role as a caregiver to a person with [Lewy Body] dementia demands I get acquainted with psychosis. A calm and contained demeanor is preferred to one in which I freak out. In a tour of an exhibit in which art and psychiatry crossed paths, it became clear to me that the psychotic makes meContinue reading “Stay calm”
Projections
The other morning, Burt told me that I was losing my mind. I was saddened by his matter of fact tone as much as by the message. He had some additional wisdom when he informed me that going to the gym was killing me. Delusional trains chug through our days and evenings. In the earlyContinue reading “Projections”
Abbrev
In caregiving circles, there are lots of shortcuts by which we communicate. This is not a glossary, just some abbreviations that come to mind: We never seem to shorten (seems right as the work isn’t shortened) caregiver or caregiving. There are lots of symptoms that also maintain their long form. Reduplicative paranesia is a mouthfulContinue reading “Abbrev”
Not to worry
It’s natural for caregivers to be vigilant about changes and signs. It’s in the nature of our person with dementia, particularly a partner with Lewy Body, to give us cause for worry. So when we fret, it has to be over reasonable concerns. And in measured tones. My tendency to panic has been noted, evenContinue reading “Not to worry”
Doubling up
My objection to the use of the plural pronoun is documented elsewhere. This annoying (to me) linguist twist finds its way into Burt’s vocabulary by way of reduplicative paranesia. “When are they coming?,” Burt asks. “He works alone,” I say about his PT, “and he’ll be here at 4 pm.” He had two weekend aides,Continue reading “Doubling up”
Know what?
Bette Midler as my jam today was in contradiction to the pity party I was engaging in. Burt tends to make less sense than ever of late. He still expects me to fill in all the blanks. He’ll cite a destination for an activity of an unspecified type. I am charged with knowing both whereContinue reading “Know what?”
Did I mention?
Anxiety is a huge factor in Lewy Body Dementia. I presume that those who were calm and composed prior to dx experience bouts of this distress once they enter Lewy-land. Burt had more than his share for years before any symptoms. In fact, he was plagued by lifelong panic attacks. His illness has made theContinue reading “Did I mention?”
this is our life 