My memories

There were many things Burt could still remember as Lewy progressed. Some were mangled memories. Until the last month or two, he still knew that I loved him.

Sometimes that awareness came as a reminder from me. I love you very very much. His eyes widened and he’d say “Really?” and smile in recognition.

As his illness progressed, he had to be lured to eat. Since lemon tarts, eggs and campari tomatoes pleased him, I cheered these repasts with a disproportionate zeal. Most other things became less and less engaging; he was unable to follow movie plots, no longer could organize doing laundry. He lost intetest in  picking up the mail.

My memories are wandering back further to enjoy my beloved Burt when he was whole. His enthusiasms were many, varied and whole-hearted.

I revelled in his appreciation of a good lobster dinner, or a new wave meal. He truly loved ballet and all sorts of drama. We shared the pleasures of sports, sex, food, theater and television.

The Burt of those yesterdays long ago was a man of keen interests and sharp intellect.

Today, I remember Burt when we first met. He was curious, full of adventure and a natural teacher.

I miss that Burt and the more fragile guy whose eyes widened when I said I love you very very much.

Really!

It went so fast

In a rambling dinner conversation, Burt’s favorite aide [and mine] and I inevitably spoke of him.

His idiosyncracies over the rules of laundry and eager attendance to the mailbox were still part of daily living when she began. Only toward the end, in the last few months, did Burt think I was just never here.

My absence [even fictional as it was] distresses me. As it must have him. He felt abandoned, I’ll warrant, and I will try to make amends to the soul who lingers in my memory.

We spoke of him with the fondness of familiarity [which I affirm does not breed contempt]. We realized that his final downfall was quick. Percipitous.

We agreed that we miss his humor and some of those idiosyncracies of his.

I was prompted

It’s hard to feel like you’re thriving in the midst of the downward cycle of dementia.

My policy, as I have often called it, was to get help in early so I could get “me time.” It was to save myself, to keep from drowning, to stay positive.

In retrospect with Burt-dear Burt- gone, I miss having more time with him.

Not a realistic regret. Time away and to myself made it possible to value time with him. I NEEDED the time on my own time.

I want a little of both because what I really want is that he not have been ill and that I could have had time with the old Burt, the from-before Burt. I came to love him in his dementia, in some ways more deeply than I ever thought could be, but boy could I have enjoyed more time with him with all his faculties intact!

I have survived his illness as he has not and now I am learning what to do with all this “me time” his absence necessitates and gifts me.

Our journey. Now it’s my journey alone

I know that Burt is guiding me through this part of the journey. I say this despite my averred non-[even, perhaps anti] spiritual stance.

As a new acquaintance told me yesterday, we don’t approach death in a direct way. We don’t for many reasons, one of which is a natural fear of our mortality. We can’t face death as we should, both honestly and as a part of life.

Witnessing the death of a loved one is, actually, a profound moment. The experience of Burt’s passing bound me to his life and memory. Now and going forward.

It’s going to be different

There are so many ways in which I am missing Burt. This is not unusual when mourning.

I believe that we face our loss uniquely, not just as individuals but at different points during any given day.

I played ping pong at Spin. Badly but in memory of Burt.

I awoke thinking about the Burt of many months past who was still communicative and sociable. I miss that Burt, as I mutter to myself on this dawning day. I miss his grip although I had often grimaced at his strength.

I miss him. I wish I had more time with him although I had often run out to take my time without him. My respite. I know I needed that time in order to make our time together easier, better. Now I wish I had more time with Burt.

Ping Pong

Somehow Burt always crops up in my conversations.

I sat with some strangers at the senior center chatting about the play [Humpty Dumpty] I had seen while one of them was in the Hands Off! March and the gym classes we attended.

One of the strangers, now my new friends, mentioned the ping pong program he enjoyed. My husband, I said, won a city-wide ping pong competition. As a teen, I added, perhaps unnecessarily.

We played only once, I said, and I beat him. One of my table mates suggested, he let you win.

No, he was too competitive, I said not mentioning how competitive I am.

Married Lady

My views on marriage were a bit more open than not. I was a 60s hippie-adjacent sort, after all.

Burt felt that the commitment was an important turning point. He proposed on the morning of his 51st birthday in 1990.

In retrospect, from where I stand today, being married to Burt was the best thing that ever happened to me.

I am not saying that I would not have been as committed to him, to us, if we had not said I do.

The years that we lived together would be enough commitment for me. Being wed was icing on our cake.

May 3, 1992

Saved from the bell

Burt got us out of the market. He had been a stocks and options broker and had happily traded for many years.

As the LBD wracked him, he became leery of trading in the markets. I think he recognized, on some level, how complicated it all was. And under his new circumstances, that he was having a difficult time dealing with complexities.

He always liked bonds, and had invested in government paper at some point. Bonds offered a fixed income. I think that was part of the attraction. It was pretty easy work, too. Fixed income for a fixed amount for a fixed time.

With the recent turmoil on Wall Street, I can only be thankful to Burt for leaving me with some financial stability in chaotic times.

Just one more way in which Burt looked out for me. Today, a friend and neighbor said you kept him going. As she saw my eyes wellup, she added she knew He kept you going, too.

In my dreams

On Friday night I dreamt that Burt came to chat with me. He sat on the edge of the tub, cigarette in hand. You don’t smoke I said. I thought I’d try it. No harm now. He was casual. We don’t have a tub. He looked well, was lively and he said I got my smarts back.

I had never heard him speak like that but the cadences were very welcome to me. It was nice to see him, even in my dreams.

Aging

I awake, listing all the possible times of night [or early morning] it could be. I get up, walking with that strange rolling gate that age has gifted me.

I have become an old woman in the years that Burt suffered his dementia. I stayed perky-ish while he needed me but since he left, I feel my years more deeply.

Some of my newly prominent issues can be mitigated. I expect that a set of hearing aids and cataract surgery will help. Some exercises to address pain and stiffness in my knees can’t hurt either. A long overdue attempt at weight reduction might smooth some of the lugubrious slog of my movements as well.

At least that’s the plan, darling, I tell him and now you [dear reader] as well.

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