Married Lady

My views on marriage were a bit more open than not. I was a 60s hippie-adjacent sort, after all.

Burt felt that the commitment was an important turning point. He proposed on the morning of his 51st birthday in 1990.

In retrospect, from where I stand today, being married to Burt was the best thing that ever happened to me.

I am not saying that I would not have been as committed to him, to us, if we had not said I do.

The years that we lived together would be enough commitment for me. Being wed was icing on our cake.

May 3, 1992

Saved from the bell

Burt got us out of the market. He had been a stocks and options broker and had happily traded for many years.

As the LBD wracked him, he became leery of trading in the markets. I think he recognized, on some level, how complicated it all was. And under his new circumstances, that he was having a difficult time dealing with complexities.

He always liked bonds, and had invested in government paper at some point. Bonds offered a fixed income. I think that was part of the attraction. It was pretty easy work, too. Fixed income for a fixed amount for a fixed time.

With the recent turmoil on Wall Street, I can only be thankful to Burt for leaving me with some financial stability in chaotic times.

Just one more way in which Burt looked out for me. Today, a friend and neighbor said you kept him going. As she saw my eyes wellup, she added she knew He kept you going, too.

In my dreams

On Friday night I dreamt that Burt came to chat with me. He sat on the edge of the tub, cigarette in hand. You don’t smoke I said. I thought I’d try it. No harm now. He was casual. We don’t have a tub. He looked well, was lively and he said I got my smarts back.

I had never heard him speak like that but the cadences were very welcome to me. It was nice to see him, even in my dreams.

Aging

I awake, listing all the possible times of night [or early morning] it could be. I get up, walking with that strange rolling gate that age has gifted me.

I have become an old woman in the years that Burt suffered his dementia. I stayed perky-ish while he needed me but since he left, I feel my years more deeply.

Some of my newly prominent issues can be mitigated. I expect that a set of hearing aids and cataract surgery will help. Some exercises to address pain and stiffness in my knees can’t hurt either. A long overdue attempt at weight reduction might smooth some of the lugubrious slog of my movements as well.

At least that’s the plan, darling, I tell him and now you [dear reader] as well.

New paths

In February, after nearly five years suffering with dementia, at the age of 85, Burt passed away.

Before Burt’s illness we had a pretext of youth. Carefree and adventurous, doing and going was our style.

During the years of Burt’s illness we had changed our focus. I am looking to pick up a new thread.

I have no illusion about being young anymore. My life without Burt moves with a different pace.

Little by little, I am starting to make doing and going my style. It’s a tribute to me, my interests, and it’s a tribute to my life with Burt.

Braving his fears

Burt had always seemed to be a “scaredy cat.” As his dementia progressed, he was fearful of the many dogs in our building. He would shoo them and then regret his rudeness and make his peace with their owners. He worried loudly when he participated in his PT or when we moved him in his bed.

Burt was prone to panic attacks all his life he’d told me when we met. At one early moment in our relationship, I was panicked by his panic attacks; I split up with him. It was my good fortune that we found our way back to each other.

When I first knew him, he had overcome his terror of subway travel.

We had to be in the first car so he could gauge the signals; if it looked ominous, we stepped onto the platform and addressed his concern to the driver.

On one occasion, forced into the third car because we were with friends, his discomfort was visible and palpable.

Over the ensuing years, we took many a train ride, by subway, by Amtrak and MetroNorth. Burt seemed to revel in the challenge of facing his fears.

My love was always conquering his fears. We lived in a whirlwind in which he was confronting and embracing his terrors headlong. We also lived with lots of joy and enjoyment.

In the end, I came to realize, it was his bravery that I had always admired.

Prompted at a writing workshop

Burden / Blessing

My burden, as it were, is lifted. Burt has passed and I am relieved of caregiving. I have the blessings of memory. Good memories, mostly, from a good long-short marriage, from a friendship that enriched my life; good memories from years of doing-together; and, yes, good memories from nearly five years of caregiving, of tending to what needed to be done.

My burden now is proceeding alone without Burt; with just the memories of who he was for all those years of our life together; of who we were, individually and conjointly.

My burden and my blessing is the new path I have to forge in which his presence is an absence.


Pity /  The Inevitable Change

When Burt was suffering what proved to be his last decline, I cautioned myself to avoid feeling pity. I knew it would diminish him. It was disrespectful. He was a full-throttle person. He had lived big even in these small circumstances. If I loved him I would honor who he was and not pity him.

I could absolutely feel sad, be sorry for the state-of-play his dementia brought. That  was not pity. It was the acknowledgment of where we were. This is what’s happened, we’ve come to a sorrowful point and I am sad that we share this reality. I accept it. I do not feel pity. My sadness doesn’t make you smaller.

Dementia is a fast-moving ugly storm. It destroys our equanimity and forces us to adjust. It makes us strong and courageous. Burt showed nothing but courage. That’s to be praised not pitied. That’s how we accept the inevitable change.

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