There will be days like these.. the line is from a rock n roll song. My mama said… it goes on… and it is only a caption, not the whole story. More to the point, those of us who are mourning know that there will be bad days and better days. Sad days and betterContinue reading “Sadder”
Tag Archives: #celebration
A great find
Noodling around my video cache, I found a 6 minute video in which Burton is speaking. We are snacking at the rehab. It’s dated April 2023. He is sweet and really enjoying his sweets. Among the dialog is his request I bring one cappucino instead of the latte. I say “But you like latte.” BurtContinue reading “A great find”
Some stories
Burt’s journey has ended. My journey continues without him. Or perhaps by dint of remembrance, with him, just kind of looking out for me. Like he always did. Part of my portmanteau now is recording what was. Both the orts and the epic. I know my friends expected me to tell tales of Burt at theContinue reading “Some stories”
For May 3rd: games
And ice breakers The party for Burt on our 35th anniversary was a treat. There was so much loving energy in that room that we all knew he was there. It was unnecessary but I had prepared a little ice breaker based on the Burt approach. He made friends in our building both before LewyContinue reading “For May 3rd: games”
Planning
Have I told you that my party plans for May 3rd have proven to be healing? The choice of venue is close and that pleases me. On my way home from a site visit, I said, smiling and speaking to myself alone Burt will be so surprised. Preparing to throw a celebration of his life isContinue reading “Planning”
Speaking of gratitude
As I suggested to you, because it was suggested to me, it really helps us focus on the caring when we note at least one positive interaction with the one we love. I dare say, this is true in civilian life also but for us who are caregivers, it’s a monumental help. I had twoContinue reading “Speaking of gratitude”
The practice of care
Best practices include the care of our darlings but as caregivers we need to look out for ourselves. Care for the caregiver includes respite, a topic dear to me and upon which I have expostulated at length. Self-care can and should be done in the company of others. Spend time with friends. I have lunchContinue reading “The practice of care”
We traveled a little
Burt had many anxieties when we first met, had had them for years. He feared train tunnels and getting stuck in them. He always faced his phobias. He planned trips for us, often by train. In fact, trains became our favorite mode of transportation. Our trips were special. We went to Mystic and spent aContinue reading “We traveled a little”
Party king
A birthday surprise
“I am never going here with you again,” Burt whispers. Maybe he even said “anywhere with you,” but you get the gist. It was a wonderful party. Our friends brought him thoughtful gifts. At my suggestion, we sang him the birthday song. (Do we still owe someone royalties on that?) The first arrivals talked amongContinue reading “A birthday surprise”
this is our life 