Burt’s anxiety is a symptom of his LBD. My anxiety is also a symptom of Burt’s LBD. There are so many potholes on this wintry road of ours. Presently, I anxiously await the total eclipse. Anxiously, but not in a good way like the media paints it. I worry. Will I be able to keepContinue reading “Anxious”
Tag Archives: #challenges
A new low
Every progression brings a new dread. Burt has Lewy Body. I remind myself, and things could stabilize or revert to an earlier…. There was a glimmer of that last night. For all his earnest outpouring of ideas and his studied tone, most of his talk made no sense. As it is so often these days,Continue reading “A new low”
Ms. Fix It
I am a fixer. I feel it as a plus and a negative. My husband’s dementia is leaving him more broken each day. I can’t fix that. How can I help? How can I avoid doing harm. I am out of the house, joining an aerobics class or having coffee with a friend. He callsContinue reading “Ms. Fix It”
Cognitive decline
The way in which Burt’s reasoning works these days is odd and irregular. Much of his thought processes take him in divergent directions. He sees no contradiction. If I weren’t so stricken by his illogical theorizing, I would find it all quite fascinating. As it is, his decline (euphemistically and paradoxically called disease progression) justContinue reading “Cognitive decline”
Burdens. Joys.
Gratitude is a “thing” for the 2020s Era, but it is also a very powerful tool. This way of seeing and being opens us up to joy and enjoyment. I feel free to be grateful even for my sadness and my sorrow. With that, I feel even greater gratitude for pleasures, joys, and enjoyments. BurtContinue reading “Burdens. Joys.”
Rhythms
You and your spouse have a dynamic. It is likely, nay certain, that that dynamic will change as dementia takes hold. If you are like me, reluctant to let go, wishing it weren’t so, you will try to keep the rhythm of your relationship. It isn’t there. Sadly. They tell me acceptance will make itContinue reading “Rhythms”
Communication
Some of our conversations feel like this “Challenge Game.”
Support
There is a unique and uniquely helpful support group offered by New York alz.org. I have been participating in this wonderful writers group this past couple of months. Each session, we are guided by helpful prompts to explore our experiences in the caregiving journey. We then take some 15 to 20 minutes to write itContinue reading “Support”
Lewy is unlike other dementias
Alzheimer’s is an orderly dementia. It progresses in stages. There is a pattern as its awful symptoms afflict your loved one over time. No dementia is easy. They are each unique. Lewy Body is unpredictable. Symptoms come and go. You and your person can be plunged into troubling situations one day, only to have aContinue reading “Lewy is unlike other dementias”
The gift
His hand is so much bigger than mine. I feel protected holding his hand, and yet I know it’s my job to protect him. When he was first diagnosed he denied the diagnosis. I thought if only he knew it would be so much easier. I could justify the decisions I had to make, explainContinue reading “The gift”
this is our life 