Tag Archives: #gratitude
That’s just silly
Getting sillier is becoming a salvation. There’s some serious stuff going on. Of course there is. I need to rise to the occasion to combat the many ills that come with Lewy. I also need to find ways to smile and stay sane. If texting “Tony the tiger great” is an indication of the latter.Continue reading “That’s just silly”
My gratitude journey: a tale of before
In reviewing the very unsatisfactory week we’ve had recently, my mind flashed back unbidden to days my love and I spent in the park. The memory was of a time long enough ago that there was no suspicion of dementia and illness. Burt wanted to take me to a spot where he had been inContinue reading “My gratitude journey: a tale of before”
Burdens. Joys.
Gratitude is a “thing” for the 2020s Era, but it is also a very powerful tool. This way of seeing and being opens us up to joy and enjoyment. I feel free to be grateful even for my sadness and my sorrow. With that, I feel even greater gratitude for pleasures, joys, and enjoyments. BurtContinue reading “Burdens. Joys.”
Support
There is a unique and uniquely helpful support group offered by New York alz.org. I have been participating in this wonderful writers group this past couple of months. Each session, we are guided by helpful prompts to explore our experiences in the caregiving journey. We then take some 15 to 20 minutes to write itContinue reading “Support”
Aspirational
Let me confess that I am aspiring to a better path on this journey. I am far from treading that road. I boss him. He hates that. When he “throws me out,” instead of saying “never,” I say “OK see you around.” I need to say “I will never ever leave you.” Not only isContinue reading “Aspirational”
Our outing
I feel like I am dining out on the fumes of this event. Burt had such a good time, but the memory is not enough. With the picture arriving in my in-box yesterday, I could see that Burt was able to appreciate it. I need to plan another outing for us. For both our sakes.Continue reading “Our outing”
What can I say?
Burt had a miserable day with his aide, I should say substitute aide yesterday. He was agitated. He was nasty. He threatened the police. The trigger is hard to pinpoint. Substitute might be a part of it. She told him no. He doesn’t like no. Our regular carer texted the night before and said sheContinue reading “What can I say?”
Mellower
Me. Not he. I have become a less bristly me since Burt was diagnosed. Oh, yes, I panicked at first. He was so listless. Now his moods (for examples etc. see I’m so emotional…) give him plenty of volatility to play with. There are lulls, and he can be calm and kind. I was alwaysContinue reading “Mellower”
Gratitude
It’s Thanksgiving, that Thursday in November we’ve designated as a day on which to be grateful. I am. I still have my Burt. His challenges come with heaps of love and appreciation. That’s to say he is grateful. He frequently thanks me for everything I do for him. He doesn’t forget to be appreciative ofContinue reading “Gratitude”
this is our life 