#up-and-down – this is our life

He’s back

Burt’s decline has been very distressing. Yesterday, he slept all day. He didn’t respond to his aide and this scared her. Today, he’s back and chatting. Giving advice, happy. Ah, Lewy. He’s staying in bed but eating well and talking a lot.

A deep dive

In the abstract, I am fascinated by the mechanisms of Burt’s disease. In reality, the manifestations of Lewy Body are overwhelmingly sad. Trying to deduce patterns is part of my close study into all things Burt. I want to see what prompts his irrational conclusions and how his fantasies develop. There probably is no pattern,Continue reading “A deep dive”

Going Up

Burt is cognitively more engaged these last couple of weeks. The rescheduled morning meds might be partially responsible. Of course, I am grading on a curve. Burt’s daughter asked me about the multiple wives over the weekend. This reminded me that it appeared that he recognized me more often. There are still occasions when heContinue reading “Going Up”

For some good news

I have mentioned Burt’s enjoying people as a highlight of his disease. He has grown more outgoing over most of the course of his dementia. During the first phase of his recent dip, he stopped engaging as he had. Part of this is because he doesn’t recognize the neighbors as he used. Lately, he’s backContinue reading “For some good news”

Difficult Behaviors

My love exhibited unusual, difficult behaviors early in our journey. Firing caregivers was one of them. He could be aggressive and combative. I had reason to worry. And wonder. Things have changed pretty much, but I guess as long as he has a progressive, unpredictable disease, I will have reason to worry.

“I’m so emotional, baby”

We all tend to be so overwhelmed by our own emotions. I should have realized this sooner, but it hit me just now. A young woman was on her phone and she started tearing up when she said, “I feel like….” That conclusion brings me to our LBD partners. They are in a constant rawContinue reading ““I’m so emotional, baby””

Paying attention

Is it possible that we are watching too closely? We see declines. We worry. We are concerned with their comfort. We look to manage this disease. We know we can’t prevent the inevitable, but we look to head it off at the pass. Sometimes, when we pay so much attention, we give ourselves more worries.Continue reading “Paying attention”