Burt’s roller coaster has just been on one dip after another. His being bedbound poses a serious risk. Today we are expecting a visit from a nurse from VNS to assess the damage. We are treating two sores and the beginning of one on his butt cheek. Perhaps the nurse will have some added wisdom.Continue reading “A sea change”
Category Archives: Aide
Paying the piper
The cost of care is astoundingly high. My time has come to get some help with those costs. Fingers crossed. It would be unrealistic for me to try to meet Burt’s needs without the aid of professional aides. I know Burt’s needs will only increase. It’s a scary proposition. Medicaid is an option for someContinue reading “Paying the piper”
Cyclin’
Anyone concerned over Burt’s immortal soul should take heart. This morning, he was thanking god. Repeatedly. Mostly for me; I qvell. He was fast asleep before 6 last night and up about 5 this morning. We had an excellent time as he “discovered” we were married. “You’re so nice to me.” He ate well, too.Continue reading “Cyclin’”
Battling Burt
I need to be honest here. I said, “Stay positive.” I fully intended to do so. Fell right off that wagon fast. Burt refused to enjoy being out with me on Saturday. I mean, he was antsy and kept saying that he wanted to go home. My tactic to keep him engaged was all overContinue reading “Battling Burt”
There’s a lot to be said
From pretty much day one of Burt’s symptoms, I looked to getting help. Initially, it was because I needed my time. I wanted to get 3 or 4 hours several times a week to get out. It seemed an existential need for me. In the parlance of our dementia communities, it’s deemed “self-care.” Some ofContinue reading “There’s a lot to be said”
this is our life 