Today, I had an intensely isolated time to spend with Burt. It was cold and icy, weather conditions that kept his aide home. They also deterred us from venturing out. The short trip to the lobby – just to get out – had him grumbling over the cold. Preparations for that trip took so longContinue reading “If I had my druthers…”
Category Archives: Enjoyments
Pre-existing condition
It’s interesting how many spouses of folks with LBD have noted that their pwd was extremely smart. The other often reported fact is a tendency towards anxiety (before it’s a symptom of the disease) or obsessive behaviors. From the oral histories, we can see or suspect a pattern. Some of these psychological ticks and quirksContinue reading “Pre-existing condition”
Per usual
It’s a premise I have advanced here before. Burt is a flurry of emotions; it’s a symptom of his disease. To say his moods are changeable is putting it mildly. When I came home from my outings today, for instance, he told me how rotten I had been this morning. After a PT session, heContinue reading “Per usual”
Relax
An email recently introduced me to a concept I had only hoped to see or actually hadn’t even imagined. Juilliard, which holds a wide range of shows the hubster and I had enjoyed over the years, announced a series of “relaxed performances.” The Met museum has regularly scheduled programs similarly geared to audiences with autismContinue reading “Relax”
Our outing
I feel like I am dining out on the fumes of this event. Burt had such a good time, but the memory is not enough. With the picture arriving in my in-box yesterday, I could see that Burt was able to appreciate it. I need to plan another outing for us. For both our sakes.Continue reading “Our outing”
Self-care
For everyone, it’s likely to look different, but this was my day. Things at home were looking to be under control even though my honey was “training” a substitute carer.
Up up down up
Burt had two days of the grumps following our outing to the Thanksgiving Dinner and Dance. I realized this was a smaller version of the reaction I had read about, the slide that follows a big event. It was mild if unpleasant. On Wednesday, he told me what he liked about his aide was thatContinue reading “Up up down up”
A surprise party
What was I thinking? Honestly, I had trepidations. This could go either way. Or in any direction. A party could be too much for him. It could be confusing to meet so many people. It could be overwhelming or an unwelcome surprise. My Burt is a very social guy. He’s made lots of friends inContinue reading “A surprise party”
this is our life 