Category Archives: Enjoyments
There’s a lot to be said
From pretty much day one of Burt’s symptoms, I looked to getting help. Initially, it was because I needed my time. I wanted to get 3 or 4 hours several times a week to get out. It seemed an existential need for me. In the parlance of our dementia communities, it’s deemed “self-care.” Some ofContinue reading “There’s a lot to be said”
Good news
For some good news
I have mentioned Burt’s enjoying people as a highlight of his disease. He has grown more outgoing over most of the course of his dementia. During the first phase of his recent dip, he stopped engaging as he had. Part of this is because he doesn’t recognize the neighbors as he used. Lately, he’s backContinue reading “For some good news”
Another party
When we went to the neighborhood settlement house (as they used to be called) at Thanksgiving, Burt had an amazing time. Today, although he’s said he wants to go to every event there, Burt resisted going. We got ourselves organized for a good start by noon. He enjoyed the tea and tea cakes. He hadContinue reading “Another party”
Spinning yarns
It’s far more relaxing to spin plans with Burt rather than struggle. Is it an effort? Creating some very peculiar scenarios can tax my imagination. It doesn’t try my patience as much as resisting his. Today, he’s both insistent that we take a train somewhere to get home and that I left him alone forContinue reading “Spinning yarns”
That’s just silly
Getting sillier is becoming a salvation. There’s some serious stuff going on. Of course there is. I need to rise to the occasion to combat the many ills that come with Lewy. I also need to find ways to smile and stay sane. If texting “Tony the tiger great” is an indication of the latter.Continue reading “That’s just silly”
The confusion
It’s hard to resist the urge to say “really? Really, you don’t know that your first wife was named Susan?” Just one of a series of “really’s” that his infliction brings to the fore. As we’re on a high of successes, his confusion is more unwelcome. I feel it like the contradiction pulling me downContinue reading “The confusion”
Good news
You get some great, amazingly fantastic news. What’s the first thing you do? You share it with the one you love. Right? After that “point of pain,” I also need to share something wonderful. Shortly after we got Burt’s diagnosis, I was rummaging through a closet and found some of the extravagantly sentimental cards BurtContinue reading “Good news”
A point of pain
You get some great, amazingly fantastic news. What’s the first thing you do? This prompt [above] hits a nerve in our situation. Good news would be something to share with your spouse. As would, of course, fantastic news and alas bad. The first person I would turn to would be Burt. In his fluctuating stateContinue reading “A point of pain”
this is our life 