What’s a chapter of your life you’d title “The Hard Years” — and what got you through it? The obvious answer would be the journey I took with Burt once he was diagnosed with Lewy Body. The journey, as it turns out, had so many positives. It brought out a side of me I hadn’tContinue reading “Good fortune”
Category Archives: #joy
Documented
The photos I display on every surface document Burt’s days with Lewy Body. Everywhere, there are pictures of him as the disease progressed and some of us at ballgames or on walks by the river. It’s a 10 to 1ratio. What strikes me in the pictures I snapped during our journey is the joy IContinue reading “Documented”
Happiness
Looking at the many photos of Burt I have on my phone, I was touched by his grins, his looking mischievous. I realized how important it was to me that he enjoyed his life. And that, in retrospect. I have evidence of his pleasure. There are all those pictures I took and the memory ofContinue reading “Happiness”
What next
When that diagnosis of dementia comes, it’s natural to wonder how the future will look. Dementia is unpredictable, LBD perhaps a tad more so then Alzheimers, but all dementias are unpredictable. It’s hard to never be sure what’s in store for us. The uncertainty can be very disorienting for the caregiver. I also imagine thatContinue reading “What next”
Burt deserved the extraordinary
Burt was extraordinary. He and I had lived a happy, carefree, and modest life. We had no ambition to stir us towards greatness. He had daydreams of coaching a hapless team with me in the dug- out by his side. Sometimes. Not an ambition. We were impressed by talent and in Burt’s case that meantContinue reading “Burt deserved the extraordinary”
