The alternating

We got Burt an alternating air pressure mattress. [Amazon carries everything, and Medicare waits until pressure wounds are a dire concern before providing this remedy.] He was lifted (as usual, these days kicking and screaming) into his wheelchair so his aide and his OT could set up the bed. I sat with him in theContinue reading “The alternating”

To care and protect

My mission since Burt’s diagnosis [the big scary dx] more than 4 years ago has been to protect him. Of course. That’s it. I have pinpointed my malaise. I can’t fix this as one of the prompts in my grief writing support group put it. That phrase sums up my frustration in the most succinctContinue reading “To care and protect”

Down down up

When I speak of Burt’s return or of an upswing, I am grading on a curve. After his recent declines, he has not achieved clarity, coherence, or cognitive functioning. He tells me of imagined trips where he met people with wonderfully unlikely names. He insists I bring Tamara to him when I say, “I’m yourContinue reading “Down down up”

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