Best practices

One of my goals for this site is to offer guidance where I can. I want to list some ideas and tips that I have found handy on our journey. 1. Burt had some trouble vis a vis food early on. It worried me. I was feeding him lots of lemon meeingue pie and eggsContinue reading “Best practices”

There’s a method

What snack would you eat right now? My morning was spent toiling over a blender. Lest you pity me my arduous labors, it’s nothing. Really. Cooking was abandoned long before Burt’s diagnosis. He had grown indifferent to what I served. I choose to blame a phase pre-LBD, but perhaps my skills had grown indifferent. SinceContinue reading “There’s a method”

It’s a chore. It’s a delight.

The sound of the glug glug as the bottle empties makes me smile. Feeding Burt is a task. My wait time patience between spoonfuls is limited. I have to resort to a slow, silent count and to posture breaks. Feeding Burt is also the one remaining intimacy we share. That and giving him to drinkContinue reading “It’s a chore. It’s a delight.”

Foodie

Sometimes, something just predisposes us to enjoy a food. Cooking has been pretty much out of my vocabulary for quite a while. My favorite “meals” lately have involved some measure of yogurt, usually with nuts, fruit, and granola. (No hot food, so maybe that was what  predisposed me.) I mix a breakfast cereal mush forContinue reading “Foodie”

Food’s still an issue

It’s never one-and-done with Burt of course. He’s returning to the not willing to eat phase. His dinners are mostly pureed in an attempt to ensure they go down smoothly. Sometimes it works, sometimes he needs to get sweets to fill him up. Desserts tempt him. He ate half a pineapple cake* with his aideContinue reading “Food’s still an issue”

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