Glad you asked

Sorry to have this answer Describe a phase in life that was difficult to say goodbye to. Marriage isn’t rightly described as a phase. Some are soon ended. Others last from highschool sweetheart on, til. Ours started in midlife and ended with Burt’s death. Nearly 33 years married and almost 35 together. Maybe, like hisContinue reading “Glad you asked”

2-25-2025 [to Burt]

My burden’s been lifted, orLessened. I search insteadFor the purpose I’ve lost orMisplaced. Caregiving is aJob or a job description, soOnce it passes you are noLonger giving care.The workIs over, finished, the burdenLifted, and you by definitionNo longer occupy that job.By definition caregiver doesNot define you, it is not whoYou are. It doesn’t define me.IContinue reading “2-25-2025 [to Burt]”

Losing him again

He’s been several people over the past many months. Well, this is not at all unexpected; aren’t we all many people over a lifespan. I look at him sleeping now and regret that I can’t recall with any confidence what he was like two months ago or four years ago. I know who he isContinue reading “Losing him again”

Valentines

Speaking of the day of hearts and flowers, and I did mention it, this is another particularly difficult holiday. It’s that love stuff that gets us. Most of us have seen our marriages transformed by Lewy [or, really, any dementia]. Intimacy is not what it used to be. Love, of course, is a resilient andContinue reading “Valentines”

Memories

What makes you feel nostalgic? A YouTube video of snow cascading outside a coffee shop with jazz pleasantly playing prompted «It’s a slow game, but it’s good« from Burt. Lately, Burt will comment on a “movie” he feels he’s watching even with the TV off, so mention of the «game« didn’t throw me. For me,Continue reading “Memories”

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