The Medical Examiner failed to notify my police detail to release Burt’s body. This was an hours long oversight which involved not just waves of paramedics but lasted through three shifts of cops. We asked the first of them if R, Burt’s aide, could go home but they and he lingered at home. I calledContinue reading “Last day”
Category Archives: Uncategorized
Glad you asked
Sorry to have this answer Describe a phase in life that was difficult to say goodbye to. Marriage isn’t rightly described as a phase. Some are soon ended. Others last from highschool sweetheart on, til. Ours started in midlife and ended with Burt’s death. Nearly 33 years married and almost 35 together. Maybe, like hisContinue reading “Glad you asked”
The from before
You met Burt here after the Lewy Body Dementia had taken a toll. For years, as it progressed, he maintained a lot of who he was. And who he was was funny, friendly, inquisitive. Loving, caring, smart. It started to really diminish him this past fall, LBD did. He lost his sociability. He gave upContinue reading “The from before”
I love you. Farewell
When Burt started having hallucinations (again) in the past several months, they (like the first ones at the beginning of Lewy) were mostly benign. I think it’s safe to say he felt safe in his home. I am grateful for that. The worst might have been that he needed to take someone from his crewContinue reading “I love you. Farewell”
2-25-2025 + 2
Burt just passed and yesterday was odd and aimless although I had things to do and did them. I miss Burt although saying it out loud is stating the obvious. A redundancy. I miss his aide. I miss the routine of our days. Back to the redundancy: I miss Burt. I told him I willContinue reading “2-25-2025 + 2”
Some recent memories
Again and then
When your heart breaks, youCan only think “oh, I love you ” No one should love so muchThat it hurts so much. Maybe.Eschew love. Altogether. YouWould be spared the pain, theIntensity of the despair that Loving brings. Maybe. I loveYou too much to care that itHurts, that your pain is mine,That my heart breaks forContinue reading “Again and then”
Jazzy
My discovery on my pared-down- no-more-cable teevee of jazz videos wingtailed nicely with an email. My friend BW found the must hear 20 jazz hits. More on those soon. I’ve been spending a lot of time with Night time jazz cafes. So let’s talk about those first. This is a category of YouTubes which IContinue reading “Jazzy”
It’s the little things
What’s your favorite candy? Memory is a blessing. We can live in and relive our favorite things. And the things we loved that maybe are now lost. I mentioned that moment while I stood by a V’Day display of chocolates and realized Burt no longer could appreciate that Hershey bar. That small realization came with Continue reading “It’s the little things”
January 28th: it’s not Alzheimer’s
Lewy Body Dementia Day Lewy Body International, founded in 2022, is comprised of organizations from 11 countries. January 28th is designated as Lewy Body Dementia Day by this group of organizations dedicated to working with people affected by this disease. They form a cooperative alliance to share knowledge to build awareness, to offer resources, andContinue reading “January 28th: it’s not Alzheimer’s”
this is our life 