When your heart breaks, youCan only think “oh, I love you ” No one should love so muchThat it hurts so much. Maybe.Eschew love. Altogether. YouWould be spared the pain, theIntensity of the despair that Loving brings. Maybe. I loveYou too much to care that itHurts, that your pain is mine,That my heart breaks forContinue reading “Again and then”
Category Archives: Uncategorized
Jazzy
My discovery on my pared-down- no-more-cable teevee of jazz videos wingtailed nicely with an email. My friend BW found the must hear 20 jazz hits. More on those soon. I’ve been spending a lot of time with Night time jazz cafes. So let’s talk about those first. This is a category of YouTubes which IContinue reading “Jazzy”
It’s the little things
What’s your favorite candy? Memory is a blessing. We can live in and relive our favorite things. And the things we loved that maybe are now lost. I mentioned that moment while I stood by a V’Day display of chocolates and realized Burt no longer could appreciate that Hershey bar. That small realization came with Continue reading “It’s the little things”
January 28th: it’s not Alzheimer’s
Lewy Body Dementia Day Lewy Body International, founded in 2022, is comprised of organizations from 11 countries. January 28th is designated as Lewy Body Dementia Day by this group of organizations dedicated to working with people affected by this disease. They form a cooperative alliance to share knowledge to build awareness, to offer resources, andContinue reading “January 28th: it’s not Alzheimer’s”
Memories
What makes you feel nostalgic? A YouTube video of snow cascading outside a coffee shop with jazz pleasantly playing prompted «It’s a slow game, but it’s good« from Burt. Lately, Burt will comment on a “movie” he feels he’s watching even with the TV off, so mention of the «game« didn’t throw me. For me,Continue reading “Memories”
A timeline
Burt had a sudden downturn starting in October. Although I have documented Burt’s decline, I am still unsure of the actual events. His decline has been incremental and gradual. It has also come on suddenly, precipitously and unexpectedly. In October, things like confusion and hallucinations seemed more noticeable. Soon thereafter, one of his aides andContinue reading “A timeline”
It’s never too late
The jingle about Jello Instant Pudding® is running through my head right now, but honestly this is a serious post about a serious question. The other night, Burt, in the midst of his confusion, was lamenting how “sick” he feels. My response was to tell him that whatever was bothering him, hurting him and upsettingContinue reading “It’s never too late”
Rapid
My sense is that Burt started his path in LBD at an advanced stage. From the get-go he went from a period of apathy to being fully confused in what felt like 60 seconds. Capgras was one major symptom; little people enhabited our home; he needed reassurance that he was home. Meds helped a lotContinue reading “Rapid”
Foodie
Sometimes, something just predisposes us to enjoy a food. Cooking has been pretty much out of my vocabulary for quite a while. My favorite “meals” lately have involved some measure of yogurt, usually with nuts, fruit, and granola. (No hot food, so maybe that was what predisposed me.) I mix a breakfast cereal mush forContinue reading “Foodie”
Our outdoor weekend
This morning, Burt asked me what I was doing yesterday. I said I was in the park with you. “I didn’t see you. Why didn’t you come say hello?” It now occurs to me that Burt is antsy in the park when he doesn’t realize I am with him.
this is our life 