It’s Thanksgiving. Talk of gratitude is as prevalent as the turkey on our plates. We are parsing what is worthy of our appreciation as we sit down for today’s feast. The original idea of this holiday was to show thanks to God for the bounty in our lives. Gratitude practice is at the least aContinue reading “Grateful, appreciative, and thankful”
Author Archives: TheRealTamara
Mayhem
Burt asked me if I knew that guy. I listened a little harder, had he said Maynard? The guy, he repeated, «Mayhem«. His question gave me chills. I thought of the character Dean Winters plays in a TV ad, but I also thought of the mayhem LBD causes, the disruption in our lives and inContinue reading “Mayhem”
A Welcome Visitor
Burt really perked up during a visit this week. Our guest was someone we’ve known for many years; Burt didn’t remember him but he was a happier guy than he’d been in awhile. He even made an effort to get out of bed to go to his recliner. He told jokes. Visits break up theContinue reading “A Welcome Visitor”
It’s never too late
The jingle about Jello Instant Pudding® is running through my head right now, but honestly this is a serious post about a serious question. The other night, Burt, in the midst of his confusion, was lamenting how “sick” he feels. My response was to tell him that whatever was bothering him, hurting him and upsettingContinue reading “It’s never too late”
Rapid
My sense is that Burt started his path in LBD at an advanced stage. From the get-go he went from a period of apathy to being fully confused in what felt like 60 seconds. Capgras was one major symptom; little people enhabited our home; he needed reassurance that he was home. Meds helped a lotContinue reading “Rapid”
Recognition
When we started our ride with Lewy, I was cheered± by one assurance. Unlike Alzheimer’s the person with this dementia will always know his/her spouse. It’s a tricky point. They didn’t tell me that he would tell me that his wife was dead; or that he hates her. They didn’t say that there would beContinue reading “Recognition”
Speaking of work
Burt was looking for a job. I know I mentioned that a few times. It’s hard to dissuade him, and this delusion that he needs to work is persistent. The other night, he was intent and preoccupied with some sort of project. He’s always managing and directing others at his job. Work kept him upContinue reading “Speaking of work”
Figuring it out
Okay, this is a bit weird. One of my fears is that by the time I get the hang of caring for Burt, it will be too late. It’s a huge learning curve, at least for me. So many things to consider and do. I want him comfortable, safe, and secure. I want to love himContinue reading “Figuring it out”
Daydreaming
Burt always was a daydreaming kind of guy. I’ve been saying he wasn’t an imaginative guy, but clearly, he always was. In those days it was clear to him that he’d been imagining he was managing the Mets. It was cute that he insisted they also hire me. He knew fantasy from reality. Now, heContinue reading “Daydreaming”
Caring. Day in/day out.
My role as caregiver is certainly not an easy job. I am not saying this out of self-congratulations or pity. I try not to allow it to limit or overwhelm me. In order to, you know, keep on keeping on, I have to stay strong and centered. Burt has often told me not to getContinue reading “Caring. Day in/day out.”
this is our life 